I am writing to let you know that I am having a rather severe case of hives as a reaction to a medication and my doctor tells me he has another adult patient who reacted the same.
The medication is APO-AMOXY/CLAV 875/125. I have had amoxicillin before but not the clavulanic acid. He tells me the clavulanic acid is put into the tablet to help stop people from having difficulties with penicillin.

Thought I'd bring it to your attention as I am now in my 7th week of continuous hives as I am reacting to everything, especially amines. I am trying to go back to the elimination diet but I have been living on that for the last 30 years and have worked out a nice little menu of goodies I 'allow'. I am a super responder so it may not affect others. The hives are all over with extreme burning and itching especially at night, skin is very dry including eyelids with dry eye and styes, happily no lung or throat problems. Treating with daily Telfast tablets and so far 4 sessions of a few days of Prednisone.

Hoping you can find out if this is a new thing and if others are likely to react the same. - Gumnut

(Sue's note: we would like to hear from anyone who has had a similar reaction. Information from the Cleveland Clinic seems to suggest that people who have intolerance to foods and/or food additives may be at risk https://my.clevelandclinic.org/health/drugs/18084-amoxicillin-clavulanic-acid-suspension - as the RPAH handbook says: Avoid non-essential medication)

I can't express how grateful I am to you for the information on fedup.com.au, I have suffered with several intolerances for about 15 years. I've had no luck or help from multiple GPs...

Gut issues are such a common problem now as is arthritis, and, as a sufferer of both, I greatly appreciate your dedication and commitment.

At 71, looking back, I can see that heredity can play a big part in gut issues.  My father had them, resulting in having a part of his bowel removed which then resulted in very painful adhesions. He was told by his doctor that he probably had cancer, which turned out to be incorrect!  My daughter also suffers from gut problems.

My son constantly wet the bed, soiled his pants and had serious behavioural issues with dramatic and stressful outcomes.  The soiling went on until he was well into his teens.  Unfortunately, at that time, there was no internet access, and no information or help available from any of the professionals we talked to.  We had no idea it could all be caused by the food he was eating. After years of being in and out of several rehab centres and courts, stints in jail and drug use, he died of a drug overdose at 26.  It breaks my heart.

A very heartfelt thankyou for everything you do - Lorna

See also story collection about doctors and food intolerance

Thank you Sue for a great website and a very well-thumbed and highlighted book ... life-savers in disguise! They've been so useful, and have helped me find safe foods to eat - Mary

I would like to let you know that you're doing a great job! - Cassie

I’m trying to buy a book bundle to give to a friend - this has changed our family's life so much, everyone’s asking us about it - Sarah

I am a Mum of 2 adult males, who both had severe behavioural issues as children. I was very fortunate to find out about Sydney’s Royal Prince Alfred Hospital Allergy Unit’s elimination protocol before my sons entered kinder and school. I attended a work seminar where RPAH spoke about their protocol. I will be forever grateful for that day. I worked in health and was not aware of these nasty additives, that I was inadvertently giving my children each day as part of a ‘healthy diet’. The change in their behaviour, health and learning on the protocol was miraculous. Straying from the protocol when eating out or when they were given additive laden foods from other children at school, resulted in a complete Dr Jekyll and Mr Hyde scenario. We were simply not able to manage their behaviour unless we made their meals at home without these nasty additives. It makes me very upset to think of all the children who are being fed copious quantities of these additives in their average Australian diet, their parents unaware of the effect on them. I also get very upset that these additives are not researched for their long term and cumulative effects on health, behaviour and learning.

I worked in primary schools for several years, assessing prep students and speaking to parents about their concerns. Behavioural problems were one of the most common concerns mentioned.

My sons are now in their 20’s. One has worked his way up to a senior management position after completing an apprenticeship and the other is completing a Bachelor Degree at University. I really wonder where my sons would be, had I not attended that seminar about the harmful additives in our everyday food.  My oldest son’s behaviour was so severe we feared for his future and even joked he would end up in juvenile detention.

The RPAH research has not only benefited my sons. My health and mental health are negatively affected by many artificial additives - Jay

My daughter is now 23 years old and no longer has effects due to food intolerances. From a very early age in fact I believe from birth she showed signs of food intolerances. (Of course this is what I know now).
 
Monique cried a lot as a baby and suffered with severe asthma from just a few months old. I sought doctor's advice - there was not much support with the excessive crying but she was prescribed medication to treat the asthma. The medication did relieve the breathing but it hyped her up and caused agitation. I did not know what to do, she was having trouble breathing and I needed to help her. At about the age of two I took her to a different doctor for what reason I can't remember but she was really sick and he even considered that she may have Cystic Fibrosis due to the severity of the condition.
 
I breastfed and I now believe due to her food intolerances that breastfeeding may not have been the best option for her. Our diet often consisted of tomato based pasta dishes, and also fruit and vegetables that I now know have a high salicylate content, which of course would have filtered to the baby.
 
As the years passed we were dealing with behaviours of agitation and frustration. The outbursts and nature of the behaviours was much like the description on a child with some of the conditions that have been given a name these days. (eg. A-D-D and A-D-H-D). I never at any time considered that she suffered from these conditions and as a mother I always felt compassion and concern, and desperate to find out what was causing this behaviour and severe agitation in this beautiful little girl. The agitation and anger often started with her rubbing her nose and just a shift in mood which I learnt to recognise. If I caught it early enough I found sometimes milo drink would neutralise the effect so that I could reason with her and help. However many times she was anxious and agitated before I realised what was happening and then she would refuse the milo.
 
I knew she did not want to be like this. On the rare occasions that I would address the problem with a doctor in many ways I was relieved that a diagnosis was not offered because I did not want her on medications that are usually prescribed for the aforementioned conditions. Nor did I believe that medication was the answer.
 
After years of patience and understanding, dealing with the situation, I also saw the development of some social difficulties, things like feeling targeted and being extremely sensitive. When she was 10 years of age I decided I needed to address this once again.
 
Here is what turned out to be the answer:
 
I had made a doctor’s appointment to have one last go at getting to the bottom of this. I once again hoped the doctor did not suggest medication because even though I wanted help I really did not feel comfortable going down this road.
I was finishing my preparation to leave for the appointment and on the radio I heard Sue Dengate talking about food intolerance. Sue mentioned SALICYLATES, immediately I found a pen and wrote it down in the best spelling I could create.

The doctor still really did not have much to offer. So I asked him "have you ever heard of salicylates?" He said he had, so I further asked he had any lists of the foods that contain salicylates which fortunately he did and gave it to me.

Reading about salicylates and learning where they are helped me to eliminate the foods from her diet and this was the answer. Life soon improved for everyone especially Monique, including no more asthma. This is my story and I wish to express my gratitude and thanks to Sue for her wonderful work – Annie (from 2011)

G'day,

I found your capsaicin trial on the Food Intolerance Network. Sorry but I have not followed the schedule outlined in the trial.

I'm writing to tell you that your discovery has changed my life.

I've had this problem my whole life but the symptoms got worse as I got older. They were so bad I couldn't follow the RPAH guidelines. Potato, leek, pears, etc. would trigger my symptoms at the smallest amounts e.g. I could only tolerate 20g of potato.

The symptoms I experienced, mental and physical, were severe. They've left me unable to work for the past 9 years and caused the loss of many relationships. It left me unable to live.

I found your trial around a month ago and started the next day.

I don't have the words to describe the difference it's made on my mental state. I want to say it's given me clarity but that really undersells it. My whole perception of the world has changed and I can feel consistent happiness for the first time in my life. Ever.

I have energy. I have strength. I have coordination.

I can now eat salicylates in whatever amounts I want with no repercussions.

I've been able to start working again too.

I can't thank you enough for what you've given me. Fingers crossed it keeps working.

Thank you thank you thank you thank you – Paul (30 yo Australian)

See factsheet that triggered this remarkable journey Capsaicin for management of salicylate intolerance

(Howard note: this is an unusually effective intervention. We have found that children frequently can't tolerate regular capsaicin and many adults get only moderate benefit from this intervention)

We have experienced a fabulous side effect of the elimination diet (doing as a family, the children do not know we are doing it).

Our sauces / oils drawer now only contains 1 item now, which I've realised having so many was overwhelming for beginners.

Now that there are reduced options visible, our 9 year olds have become very interested in cooking and experimenting on their own.

Having 1 oil available is so much simpler than the multitude we usually have. Choosing from salt, garlic and chives as seasoning is enabling creativity, testing and confidence with flavours.
I love this unexpected surprise - Betty

I am a 53 year old woman. After completing the elimination diet I have learnt I react to the "natural" colouring 160b.

Within 24 hours I suffer from terrible migraines with noise and light sensitivity, nausea and high level head pain. These migraines last 72 hours. I am bed bound and incapacitated - Sarah

See 53 pages of reactions to this "natural" additive

A common commercial hummus. Didn’t eat it for months, then re-introduced it. Nasal congestion and irritation! Finally pinpointed the culprit. Preservative 202.  Great website and thanks for sharing all the info. Really helpful - Kristy

(See similar story about potassium sorbate preservative in hummus [1466] )

I want to thank you, once again, for giving us life changing support.  We are truly grateful for the time and effort you put into helping persons like ourselves who are desperate for answers, to find positive, life-changing solutions!

I just had to share with you what has happened since our last email. And just in case you want to publish it, I will start from our earlier experiences with you.

Back in the mid-90s we had 2 severely intolerant children. They lived on potatoes, chicken, lamb, carrots and rice.

Their reactions were vast... severe stomach cramps, vomiting, ear infections, sleeplessness, eczema, hyperactivity, anger, anxiety, diarrhea, constipation, snoring and noisy breathing. And lots of crying.

One day our GP phoned me. He'd seen a book called Fed Up by Sue Dengate and thought it would be helpful with our children's intolerances. If only every GP prescribed this book! It became our lifesaver, our go-to.

On the diet, they were calm, happy, restful, healthy children. People would ask us, don't your children ever fight? Not on the diet. Ever.

Our next 2 children had similar food intolerances. Over time they have all become more tolerant to different foods. But we have remained very particular about avoiding certain poisonous additives eg 160b and the 280 preservatives which without fail cause issues.  Even for the adults in the family.

Fast forward 25 years ... with hardly a visit to the Doctor for any of us and now a grown family, regular visits to the Fedup website to keep up to date with changes in food laws and also to check the failsafe additives list!

But very slowly, very subtly, things started to change. So subtly that I never connected the changes with food.

Our happy teenagers became sullen, grumpy, argumentative and restless.  We all suffered skin break outs. Anxiety levels were high. I felt like I had the acne of a teenager, the nighttime worries of a 3 year old plus anxiety. From sleeping solidly all night, I started hearing every change in the weather, and woke with every vehicle and every animal noise outside. And then had difficulty going back to sleep. It's just part of getting older I told myself.

My husband developed severe insomnia (literally wide awake all night long,  night after night, and often even sleeping tablets had no effect), along with a racing heart.  Part of old age we thought. And the doctor agreed... racing heart - you'll just have to learn to live with it.

After months and months of accepting this "new normal" but questioning it all in the back of my mind, and often wondering, what am I doing wrong with our diet? I would look at my kids that had been so happy and think, what are you eating that's making you like this? Finally in desperation I once again contacted Sue Dengate.

She very quickly picked up that we had coeliacs in the family and this was her reply:

"There is now a "Clean Label" movement by the food industry to remove additive numbers (such as 282) and chemical sounding names (such as preservative calcium propionate) and replace them with innocent sounding names (such as cultured dextrose, see https://www.fedup.com.au/news/blog/caution-cultured-dextrose). This has happened in gluten free bread quite recently and quickly, so I wonder if  your husband is currently eating the bread preservative without realising it? In my experience the bread preservative can be the very worst of additives, eaten regularly every day and often causing major changes"

Thank you Sue from the bottom of our hearts. That was exactly it. I was not up to date with this clean label movement and in all of my label checking we had been deceived. All our lives we had avoided 282 like the plague... until they gave it an innocent name. Which took us on a very, very unpleasant detour.

Maybe it happened so we can share our completely unintentional preservative journey and save others from the nasty effects of propionates.

It's been a long, difficult journey back to the road we originally were on. Many months of consuming cultured dextrose left damage that has been hard to undo.

The kids recovered fairly quickly, but my husband ended up doing the complete elimination diet and probably confirmed another of Sue's questions...

"Given that your children were "intolerant to almost everything", they probably inherited that from someone - possibly your husband. So I'm wondering whether he would feel better on the full elimination diet."

On the full elimination diet, he has come off all his sleeping tablets, and no longer has any heart issues. His skin has also cleared up.  This was a massive breakthrough! He absolutely hated having sleeping tablets.  Between those and insomnia and a racing heart, his quality of life was very poor compared to our pre-preservative life when he was fit and healthy and had no sleeping issues.

We believe that the months of consuming cultured dextrose daily, caused the major changes to his health and worsened his food sensitivities to the point that he became intolerant to almost everything!

Surely our story can convince anyone with health issues to take a good look at their diet. After our many years of food experiences we all firmly believe that most health issues can be resolved simply by diet!

Thank you again Sue and keep up your amazing work – Lorna

See hidden additives blog with links to more science

Does anyone else have mood swings as a major food symptom? I appear to get drastic mood swings when exposed to certain foods, the reaction is delayed but severe and lasts for days - Zoe

Yes, absolutely. That and sleep disturbance are major symptoms for me - Dean

Main reason we put my son on this was to manage emotions and behaviour -  Penny

Yes definitely. I find tomato chocolate and cheese are my worst triggers, and anything with preservatives in it. Also no sleep and very anxious - Lee

Not so much moods as brain fog which sort of slips over to appearing to have a mood 😳 - Jill

Sadly yes - fresh dairy cause me behavioural problems, violent & aggressive alternating with sadness (like depression) so much that I’ve been df for 40+ yrs – Josie

I fear my 3yo could be developing a stutter! Is this a symptom of eating something non failsafe? - Sam

For my daughter it’s glutamates and also a lack of zinc and B6 contributes for her. It’s amazing how quickly it cleared once I got those 3 things under control - Emily

I know I stutter worse if I’ve overdone salicylates or perfume exposures, so yes, it could be anything non-failsafe - Carmen

Some children also just go through a phase of this as they are learning to speak. Their brains are going quicker than their skills allow them. Both my girls went through this and neither of them have food intolerances. They just need patience - Maria

Mine too went from articulate toddler to clawing at her mouth to get her words out. Mine needed treatment which was successful although lengthy – Greg

My kids both stutter when amines are high. Speak beautifully if they are eating well - Ella

I find this so interesting! Some days I have real problems with speaking. My tongue gets all tangled up and it takes me 3 or 4 tries to get the correct word out. I feel like an idiot! I just put it down to old age and the brain not working properly. I also get some forms of migraine where I completely lose speech for about a half hour – Josie

See blog on Diet-induced stuttering with link to factsheet

What are your symptoms when you don't eat failsafe? For me I just feel more irritable and emotionally worse. I think I get itchy skin because of it and also I had restless legs syndrome (RLS) but more due to anxiety – Leo

Bloating, itchy skin, facial flushing, restless leg syndrome. The RLS is the most random symptom isn’t it lol. At first I thought my RLS was due to me coming off Zoloft but I’m back on them again and cut out salicylates and it’s completely gone away. I challenged salicylates and it came back later that night-super weird !! – Lydia

For me it's nausea, insomnia, extreme fatigue, headache with visual aura, bowel movement alterations, stomach cramps, restless legs, mood swings, rosacea, difficulty swallowing, brain fog, cough, and bloating. I think that's pretty much it (!). I may get several at the same time or just one, depending on the day. Some foods trigger some of the symptoms more than others - Terrie

Salicylates start off a sore throat earache and rhinitis and builds up to wheezing and breathless. If amines it’s over emotional cranky intolerant angry. It was so good to find out why I’ve been this way my whole life. I’m 62 now. I’m not just a cranky bitch after all - Renee

Oh gosh, our amines reactions are the same! Honestly don’t know how my husband can stand me – Anne

Bloating, gut cramps, itchy shins, itchy back, itchy ears, irritable – Leah

I endured pain in my hands, fingers for 6 years. Had tests for arthritis which were negative. It got so bad at night I couldn’t pull the sheets up over me in bed because my fingers would not bend. Nothing helped, until I monitored my eating habits.

I stopped eating everything that came in a can, tin, packet, or sauce bottle and started preparing my food from fresh. My fingers, hands, pain subsided. I then found this group, and found out I’m salicylates, amines, gluten, and dairy intolerant. The pain only returns if I mistakenly eat something I shouldn’t – Kerrie

See Arthritis, joint pain and diet factsheet

Years ago, a new mother (I’ll call her Beth) sent us a list of what she ate while trying to see whether food was causing her baby’s constant crying and inability to sleep. The problem turned out to be “cultured dextrose” in their daily bread. “But I thought cultured dextrose was a type of yoghurt!” Beth explained. Like most consumers, she had no idea it was another name for propionate preservatives such as 282 that she was trying to avoid.

This year, Beth contacted us again. Her daughter - now 9 years old - had just been diagnosed with autism. In the meantime, Florida researchers (Abdelli et al, 2019) had warned that propionate preservatives in early pregnancy could be linked to ASD - Sue Dengate.  

More info in our blogs: Harm from bread preservative confirmed and Caution cultured dextrose

I first became aware that annatto was a problem when I was in my thirties. I have always had sensitive skin but really couldn’t understand why I was still getting large, painful pimples so long after my teenage years (and still getting them at 74 if I don’t read the ingredient info carefully). A friend suggested that maybe I was allergic to cheese and so, looking carefully at cheese labels in the supermarket, I noticed the additional ingredient, annatto. It was a lightbulb moment. I then looked carefully at the ingredients of everything every time I went shopping and was astonished to see how often annatto was added to all sorts of products. Now in Europe and UK it is not added because of the allergic reaction it can cause, but I now notice the use of ‘paprika powder’ instead and this also has the same effect on my skin. The spots that I get are always situated around the mouth, nose and chin - Deborah UK

Our family has used the Failsafe diet on and off for a about 12 years now. My son was persistently unwell when he was young (from about 18 months plus) and the Failsafe diet was the only thing that worked. You know how difficult it can be to manage this diet in the culture that we live in, but the turnaround in his health was amazing.  He went from being a kid covered in eczema, non-stop ear infections, terrible asthma and limited speech to a well and happy boy.

At the time I used to think "Where does this food sensitivity come from?". Now I know. It's me! For the last 18 months I have used the Failsafe diet to help me through menopause. My main symptoms have been anxiety (from salicylates) and migraine (from amines). The diet also seems to be assisting with my blood sugar regulation at the moment (I've had bouts of hypoglycemia). If I was not on this diet I would be on all kinds of medication and I would be continually distressed. As it is, I feel calm and well while riding through these changes.

Your persistent work in this area is to be highly commended. Our family's health and well-being are due to your efforts. I am deeply grateful to you - Melissa

I used to be very moody and had a lot of anxiety. My husband just thought I was a pain in the butt haha. My anxiety and mood swings left after about 2 months of strict failsafe - Louis

My little guy barely tolerated food at all until after 2 and RPAH was a massive game changer for us. It’s not a complete solve but it set us on a path to finding more foods he can tolerate – Denni

We are on our 3rd week of strict elimination diet and free from soy, dairy and gluten. Finally - 3 nights of this week his sleep has been AMAZING! - waking only 2-3 times a night and going back to sleep easy with quick side lying nursing (instead his usual 10 times wakings, crying, being squirmy and restless, needing to be held and walked). So grateful to Sue Dengates Fed Up book and this group! 💕 - Nellie UK

Just thought I'd encourage others who may be new to FAILSAFE or are finding the process challenging.

We began this journey for my son almost 4 years ago. While it has helped him beyond measure and I will be forever grateful that we discovered the cause of his challenges, it hasn't been without its battles and has certainly be an emotional roller coaster.

Over the years we have tried to begin the process of liberating and building his intolerance but each time we were unsuccessful. Particularly once he started school (despite them being incredibly supportive) and spent more time visiting others, it became difficult to determine what he was being exposed to that was causing reactions. So many "mystery" sources meant there was never room in his bucket to try extra things.

BUT...finally we have begun to have success. After recognising that a major source of reaction seemed to be coming from bark in the playground and/or climbing trees at school, we trialled wearing gloves. Since then we have seen him overcome what, last term, had become an almost constant cycle of reaction.

Better still, last Friday he was able to have half an apple unpeeled without any symptoms.  He also had a sausage (containing sals and 223) and a marshmallow (without my knowledge) on Sunday and has also succeeded in tolerating that.

With the help of the gloves, we are now thrilled to be able to begin the process of liberating and trialling new foods.

I am also excited to see him feeling so much better in himself, to be able to better navigate challenges AND have also noticed that his reading has improved. He is also making great progress with his music thanks to his increased level of focus and concentration.

I definitely encourage anyone who is having doubts or feeling disheartened by setbacks they encounter to keep trying. It really is worth it - Becky

I have a 22 month old who doesn’t react well to Kids' Panadol (he gets restless and angry, different to the symptoms of being unwell). I suspect like my 4.5 yr old son he may be sensitive to some of the added ingredients. My older son reacts to additives, glutamates and a build up of sals, he gets defiant, negative, angry and moody. Thank you for the work you do! It has been a life changer for my older son and our family! - Sarah :)

I am currently in the baseline part of the elimination/failsafe diet, keeping sals predominantly low with the occasional moderate. I have found without calorie counting that I have lost about 8 kg in 5 months - Joan

See factsheet on failsafe weight loss

My son who is 16 has suffered from gastric issues his entire life. We had no idea why and he has had tests done etc. When he had COVID a couple months ago we gave him orange colored vit C gummies. He got really sick but I just thought it was more symptoms related to COVID. He was not feeling well recently and gave him the same gummies. He again got very sick. We looked at the ingredients and found Annatto. We started researching it and was shocked and knew instantly by the foods annatto is in that this is the reason to his issues that mimic IBS. Though I am glad to know of his allergy I am shocked to see how many foods have it in them.

Thanks for your research on this so we have an answer and can eliminate annatto from his diet - Jen.

See factsheet on annatto 160b

I recently discovered Failsafe and found it profoundly helpful. After removing the Calcium Propionate from my son’s diet, he was able to read books again. He has M.E., diagnosed 8 years ago. He lost the ability to read books, so this was like a miracle. Small change, big impact.

My brother also stopped buying bread with calcium propionate, he was feeling exhausted all the time and suffering from brain fog. From the first week he already felt the difference – Marcia (UK)

(Sue comment: what an amazing story, 8 years of ME/CFS and non-reading due to propionates!)

See blog on confirmed harm from bread preservative

And a similar report on diagnosis of CFS really due to 282 propionate

I am in day 4 of my elimination diet… my blood pressure has gone up to 160/95 … normally my BP is about 138/90. Borderline high.

Day 9 - My blood pressure is actually better than before the diet ... Now it is averaging 125/80.

Day 14 - big news! …I was buying my chicken and beef at my local grocery store and it must all have been cryo vacuum packed. Everyday I got sicker and sicker … I am obviously a big, big amine reactor. I had chicken twice yesterday, so today is my first day off of cryo-vacced meats, yet I am already a little better.

13 months later -My blood pressure is fine. I am fine. My problems were all related to eating supermarket meats, which I found were all at least a month old. Once I went back to eating (fresh) plain beef and chicken … my symptoms all cleared up - Bradley (from 2007)

Ok so it’s only day 3 and I feel like giving up - that must be a record, right?  My son 7’s behaviour has gone through the roof since starting and I’ve no idea why. My 4yr old who doesn’t have to be on this diet (but is because there would be no stopping my son if there were foods in the house he couldn’t have) hasn’t eaten a proper meal in 3 days. She is fussy at the best of times but eats well enough. She is absolutely refusing any of the dinners I’ve cooked. Every spare second is spent on food prep while wrangling a busy toddler only for no one to eat what I’ve made. The kids are living off pear muffins but I’m freaking out. Should I keep going? - Kirsty

In response, among a lot of great practical advice, were these encouraging comments:

It's really tough at first but if it works, it can be a life changer. Seriously. I'm not exaggerating – Terry

We found that the foods our kids were super keen to eat (i.e. your toddler with tomato dishes) were the ones they shouldn't have. Fed Up talks about this, it's like an addiction. Our two kids of similar ages to yours didn't want anything we fed them except the sugary things to begin with, and we'd come from a very nutritious whole foods diet before that. We stuck with it, and they are different, more composed, happier little people now that we have their food sorted out. Stick with it, it is so worth it - Sara

Weeks 2-3 were a nightmare for us ... totally worth the persistence though and ended up being more important that they ate something rather than what they ate for those few weeks until they got past withdrawals (lots of homemade nuggets and chips) and then had a complete change in behaviour 😊 Hang in there - Kerry

They’ll get more adventurous once you get through the withdrawals, but I found behaviour during the first week or two of elimination was far worse than whatever was going on beforehand xx - Helen

Good luck keep at it, it's totally worth it - Sharn

I got told withdrawals are usually day 3-7 and it would be hard and to push through and we were better off the next week. My Bub was falling through the percentiles and I was terrified when she wouldn’t eat anything other than pear for days but now she eats all of it and is climbing through the percentiles - Eli

I had terrible symptoms at first and it took me a long time to get to baseline but it’s so worth it to find out what the culprits are - it could be just one food group! - Kath

Just keep at it. I cried a lot at the beginning and it felt like all I did was cook and a lot of the time it didn't feel successful. We had horrendous withdrawals with our oldest son. But it was wonderful to get through that and have him hear me and for the first time say 'what did you say?' – Sue

FINAL WORD from Kirsty again: “I’m overwhelmed by the support of this group. I was ready to give up after a few days but the encouragement, advice and suggestions have kept me going! It’s awesome.”

See withdrawals factsheet

See how to start failsafe eating

Liz asked “Did anyone else get a little anxious over starting the challenges? My daughter starts the salicylates challenge today and life has been so nice and uncomplicated since we started failsafe eating”.

Comments:

Yes! I really don't like it when I feel sick again while doing a challenge! But I guess it helps me remember how far I've come - Dea

I think anybody who does the diet gets nervous when they do the challenges - Melissa

Yes! I like the accidental challenges better – Amy

I was after the sals challenge - big reaction from that (hives, congestion and reflux for sals. Rash over my face for amines. Pretty sure my main triggers are processed tomato and capsicum generally, but starting reintroduction phase now). I didn’t want to start another challenge - Val

I was nervous to but in the end my son got through Sals and Amines then had a massive Behavioural reaction to glutamate, so in the end we could add back in lots of stuff and be really targeted on what we avoid, definitely worth doing. And helped us in the long run. Good luck! - Anne

Yes it’s a horrible feeling. I struggle with this with my son but the joy when you can add more foods in is worth it - Helen

Yes, I had a reaction from a challenge on the weekend and had forgotten how rotten it felt – Lee

I did the big food groups with my son but then stopped as it was horrible for everyone when he had a negative reaction. Good luck - Nickie

I had IBS (lots of other issues, too) and my Dr. put me on the FODMAP diet. I didn't find it to be helpful for me. But posted on the FODMAP Facebook and a wonderful Dietician told me that I probably had an issue with "naturally occurring food chemicals". I asked him what food chemicals did he think as I was going to my own doctor. I had posted what I was eating and my issues and he said Salicylates, I hurried and printed out the food list and WOW! What a great change in my life!! So lucky to be pointed to the issue that I had - life was not good before I knew about Sals! Diet helped me to get back to normal. I blame my Cancer on all the issues that I had being Sals Intolerant! So very thankful for finding this wonderful site for all the help! - Karen

Help! request from Liz:

We have been failsafe for about 8 weeks and my daughter is doing amazing. She has lost over 10cm in bloating on her waist and can finally sleep through the night without constant sinus problems. She passed the sals challenge no problems and we are waiting until after Christmas to do the next one.

The problem is school holidays 😩 we are going away with 4 other families for over a week. I definitely don’t want her to miss out on what all the other children will be having (ice creams, trips to the bakery, restaurants, popcorn at the movies….) but I also don’t want her to miss out because she is feeling sick. I guess I’m struggling to get me head around how I can find balance.

Do I throw caution to the wind because it’s only a week or do I try to stay on track and help her make the best of the situation? What is everyone doing over this crazy period?

Supportive answers:

We stay on track. It’s not worth it for us. We have failsafe treats available etc - Carie

I'd stick to it and keep going with the challenges rather than having to go back to elimination for another 3 weeks. If she passed sals may pass another one easily. Just have lots of Failsafe treats available and give her those instead – Brin

Keep with it. Have plenty of alternatives on hand. Explain to her that even though she can't eat everything they do she can participate and that is so much more fun than being unwell and left out. Good luck 🍀 – Karen

I'd keep at it, but perhaps there are sals treats she can have? Eg new fruits and gelato, or naturally coloured jelly snakes? - Celia

At the movies she might be able to have plain chips depending on what ones they sell. If the others are getting icecreams get her a lemonade icypole (some non-strict fs ingredients but not too bad) or a dixie cup. Schweppes lemonade for soft drink. Maybe make some fs treats you can share with the other kids. Buy fs pre-packaged biscuits, lollies – Angie

Easier to keep going. If you make it ok to eat the wrong foods, why would she avoid them later, if it is something she really can’t have. Even the adult in our house, when on fs elimination, kept saying ‘can I have this’, so often, trying to push the boundaries, it nearly drove me crazy - Lisa

I would just keep going. It took my son up to 6 weeks to be back to baseline after some mistakes and challenges – Steph

We just bring FS treats wherever we go that I know my youngest can tolerate. He’s been strict to moderate for 4.5 years - Maria

We always stick to it. My kids still bring up the times their dad said have whatever and that was several years ago! They push boundaries. But I always have our treats etc made up to go away – Mollie

I try to find a new treat or two, or even stop using one now so it's more exciting in a couple of weeks when we start using it again. Treats that she can share with others are a big hit, because then others are eating what she is. Current go-tos for that are milk bottles, Pascal marshmallows, French fries chips and Parkers pretzels. I always have mini packets of foods, as then it feels the same if other people have packets, and the packets add colour. All the best! – Amy (more below)

• Homemade icypoles (I just bought the Cherub Baby reusable icepole pouchs to use since they have coloured prints), while on holidays you can water down Heinz pear jar and freeze that.
• Choosing the right dinners I find more important than lunches/breakfasts for my daughter. Chips and bring homemade nuggets or just poach chicken pieces, served with Heinz pear as dipping sauce. Current favourite is self serve meals, e.g. wraps and toppings, rice bowls etc. She doesn't mind missing some choices if she can make her own from 4-5 of the available toppings (though we never put her old favs up like pineapple).
• In terms of treats, like if the others are sharing lollies or chocolates, I have her lollipops or the milk bottles, but I also have a swap box that has stationery, little cars, balls, mini lego sets etc. So she accepts the food that's handed out, excitedly gifts it to her dad and then gets to choose and item or two from the swap box. I'll be packing the box for our camping holiday.
• Just be aware that if you choose not to stick 100% and stray too far, it might take you weeks to hit baseline again and therefore longer to be able to do another challenge (speaking from experience!) so I'd stick as close as possible to it, and choose treats wisely, e.g. only every second or third day, from the next column up, but definitely avoid anything in "very high" category.
• Only other piece of advice is be pre-emptive. See or hear other people getting food ready? Offer to add something to their Platter so she has something she could have. Or if it's something she'll struggle knowing she can't have, then it's the perfect time for you guys to have some family time and go for a walk or something so she doesn't know what she's missing out on. Also making sure they aren't hungry means less likely to be tempted to eat stuff or get caught out and have them eat a big serve of risky food. So we make sure any meal we have control over is full failsafe and filling, so that her bucket is as empty as possible so other things *hopefully* don't fill her bucket up.
• Also make sure all meals and snacks are done on time, and offered even if she doesn't ask (e.g. busy playing with cousins) means she won't be hungry plus higher chance I can offer the rest of the kids what she's eating.

See also blog Holidays are a good time to do the elimination diet

Back in the late 80’s I was dashed to RPAH after I over-indulged on cinnamon candies. I was found to have severe salicylate intolerance and have pretty much remained on a very restricted diet for decades. Dr Swain was just beginning to put out recipes. After a decade of living abroad and recently returning to Australia, I am absolutely OVER the MOON to see the leaps and bounds in the understanding of salicylate intolerance! There’s so much more understanding, information, education! In the last few years, I have also been diagnosed with several auto-immune disorders and wonder if there is any research connecting the two. THANK you so much for your amazing work. So many more people are now aware of the dietary restrictions of salicylate intolerance - Marie

I found recently that I am definitely intolerant to annatto in cheese, I normally buy white cheddar. But for the second time in six months I bought Red cheddar by mistake and both times became extremely tired to the extreme that I could not stay awake and completely exhausted for 24 hours. But luckily no long term effects - Ron from Ireland

My daughter has an intolerance to 160b. If she ingests even the smallest amount she will get severe stomach pain and constant vomiting for around 6 hours. She has not had an attack since we removed it from her diet - Sarah

See factsheet that reminds us that you can get intolerance and allergic reactions from this natural colour

As a naturopath and nutritionist I thought I was as conscious as I could be in terms of what was healthy and what was not around food. But then my youngest child was unable to be enrolled in school and exhibited severe behavioural disorder and emotional dysregulation and the only thing that kept him settled and life somewhat normal was the "failsafe diet".

Between 2012-2016 we worked hard on sticking to failsafe foods for the whole family and it was the best decision I ever made. I fought the school system and three schools later, was able to have my child enrolled in a regular class without any need for formal diagnosis (which I flat out refused). He is now 14 yrs of age and thriving academically and socially.

We transitioned to regular style of eating (minimal processed of course) around 2017 and haven't looked back. I believe the strict break healed his gut completely without intense gut healing protocols and tonnes of supplements.

By contrast many families I know who wouldn't touch a diet like this with a barge pole have children who still have high needs and require special classes and schooling and are years behind my son in mental cognition. I sing the praises of Failsafe to parents far and wide.

My son has a future because of failsafe! – Vicky

Thanks for always keeping us safe and safer!! Love the community, how we can all help each other do better. Commend you both for all you have done to start this and keep it going – Diana

My life is definitely better because of you! - anon

Thank you for all the work that you and Sue do. I'm just finishing the additive challenges that we have chosen to do with our 4 year old and hoping to get to liberalisation before starting school next year, and have a 1 year old who is definitely Salicylate intolerant amongst a whole lot more. Without your work, there is no way I would have survived the past 7 months - Amy

I'd like to say THANK YOU for your valuable, relentless and inspiring work in the field of food intolerance! One cannot overestimate the support - both through information and self-empowerment - that you give to people affected by food intolerances and those caring for people who are affected - Sylke Sedelies, dietitian in Berlin, Germany

We are from NZ.  I spoke to you at least 20 years ago on the phone regarding our 2 children who were intolerant to almost everything.  Your  support and website information has been a go-to and a life saver for us ever since. Our children have grown out of a lot of their intolerances and over the years I have become less obsessive with ingredient checking.  We live gluten free due to a coeliac being in the family and all of us feeling better without gluten in our diets ...We are very aware that 282 is the worst of all additives, so I'm very grateful for your heads-up...Sure enough, cultured dextrose is listed on Pam's Gluten Free bread that we have been having this week. I have also googled the ingredients for the Vogels GF loaves we normally buy, and it's in those as well!! I am so glad you mentioned it. I've just fed the remainder of Pam's loaf to the ducks …" - Linda

See why to avoid 'cultured dextrose'

Q: When suffering from the symptoms of a food intolerance over a long period of time are there known detrimental effects on any other parts of the body like liver, kidneys or nervous system? – Anne

I suffered for 40years before I discovered my intolerances, my health seems to have reversed. I’m in excellent health now. I was on prednisone for salicylate induced asthma, drugs for reflux & skin issues. Now no drugs at all. I’m still pretty sensitive, I can’t eat fruit ever, but my pretty dramatic symptoms (throat spasms, loss of vision) clear up pretty fast once I started FS, the challenges where really tough. It changed my life - Kath

I also feel so much better since going on this diet – Sharon

You’ll feel much better and may be able to ditch some drugs that were previously helping you deal with symptoms. But unlike coeliacs who’s gluten intolerance actually causes stomach damage, at this stage there is no evidence to suggest that other food intolerances cause damage to your body – Jody

My liver function wasn’t optimal and I had fatty liver - yet never had alcohol. I was also puffy and looked unwell. My iron level was way too low (7, when meant to be 45-55) and I was permanently exhausted. 6 months after being on failsafe: normal liver function; 15kg lighter; headaches gone; no puffiness; iron now normal – Susan

I’ve had chronic sinus issues my whole life. Was going to have sinus surgery due to CT Scan and severity of symptoms but I changed my diet (no wheat or dairy) and my subsequent CT scan showed much healthier sinuses. I also had positive Anti Nuclear Antibodies (ANA) in my 20s, which disappeared when retested last year (15 years on). The body and brain are so fascinating - Katie

Q: Has anyone had trouble with thoughts...like out of body experience? And thoughts not coming in chronological order and just all crashing around? My DS20 is having a terrible time! - Janine

Salicylates trip for me - Narelle

Yep salicylates make me feel like I’m in a cloud & not really present. Makes me feel like I’m on the outside looking in 😒🙃 – Abbie

I was a complete space cadet on amines, turned up to a massage that had not even been booked, but really thought it had. Put wrong contacts in wrong eyes. Super tired and spaced. I get really cold too, when I eat the wrong thing ... - Peta

I get the same thing! Brain fog, feeling fuzzy or “feeling out of it” I call it. It’s so frustrating but so glad I am finding relief now I am on elimination 🙂. (And also glad that we can all understand what we are going through. It’s tricky explaining to people who don’t experience it) – Pam

Thanks for your comments! I'll pass it along. He said he felt sooooo bad. It was quite scary - Janine

See more in factsheet on withdrawals with antidote for salicylate reactions.

Q: Has anyone found that the elimination diet has triggered eating disorder behaviours that weren’t present before? - Terri

It can trigger orthorexia in some people, which is sort of like considering all the foods that are bad for you, as being inherently toxic to *everyone* and not just, bad for yourself - Belinda

Unfortunately going on any sort of diet is a risk factor for developing an eating disorder – Sara

I have done the failsafe diet for both my husband and our son (one in, all in) and I am a recovering anorexic (last hospitalisation was over 20 years ago). I found that I had to start seeing my psychologist again when we first started the failsafe diet 3 years ago. Together we came up with strategies to overcome the feeling of restricting food intake etc which was extremely helpful – Kath

Yes. But on a lighter note....any diet that allows me to eat chips and jersey caramels is going to cause issues! - Annie
 
It was partially responsible for triggering OCD for me (but trauma played a big part too) because realizing I react to things like wrong cooking method or food kept a bit too long or contamination from other foods was something my brain grabbed hold of and ran with 😬 - Rene

I am the opposite. I never liked eating as I often felt unwell after eating. Now, I can eat without feeling sick so I actually eat more & enjoy eating - Sharyn

Yes, to the point I made myself really sick from malnutrition. I was already struggling with medicine-related poor appetite before failsafe. Around week 3 it all went downhill as I preferred starving to the idea of eating the stage one food options again. It took months for anyone to realise how little I was eating. It is still very early in the recovery stages where it is a huge achievement if I manage one meal and a snack two days in a row - Becky

Yes, but my dietician was aware that this happened a bit last time I did a gut healing course. We agreed that I had to do all the steps properly and transition off properly and check in often and have a food diary and write honestly so that if I wasn't eating enough or focusing on things too much he would steer me away from that. I have been better than last time but I want to get off this diet because while it's been helpful I know mentally I need to more food options again soon – Megan

Yes, this diet made me utterly bonkers! I was obsessive to the point if throwing food away if it was cooked a minute too long. Would be wonderful if there was a support group for this – Anne

See more in our excellent factsheet with scientific references

It was my go-to when I was explaining to school and health care providers what I was doing. It was reassurance when I couldn’t remember the details and also a go-to for troubleshooting - Kristan

The references. It's strengthens your case enormously when dealing with sceptics, or those that thinks it's another form of 'fashionable' diet fad, including hospital admissions folk, teachers, etc – Stephanie

Didn't read the book but use the website. It's really useful for navigating tricky stuff like how to avoid glutamates etc. I was making mistakes and this helped me see where – Sarah

It helped me understand that I wasn’t just a naughty kid as I was treated - Ruth

This book was my bible when my kids were little. I did the failsafe diet 16 years ago, and it was the only reference I had. What have I got out of this book? Boys that went from being the ferals of the school to the politest boys in the school (in three weeks). Boys who I could take places, without fear of a food based tantrum, peace in the household, some of my sanity back. This book re-defined food for us, and has made our life so much better. It gave us the tool to let them be the men they are supposed to be. Now my oldest is 22, and we have been on this way of eating for 16 yearsand they still check labels. I have two at uni and one aimed there, all doing engineering of one form or another. Thank you for giving my boys back to me - Liz

This book is the only book I source recipes from. Can’t live without it. Thank you both. I recommend it to anyone who suffers allergies - Jean

In September we recorded our 13 millionth website visitor at www.fedup.com.au. Thanks everyone for being so supportive and positive! Feedback:

Woah! What an achievement 🙂 . Another sign that you've made it: you have a hater group on Facebook, called 'Sue Dengate Failsafe Group Exposed'. Apparently your dietary advice needs to include much more about the impacts of vaccines and water fluoridation on dietary intolerance! 🤣 Last I saw, it had six members – Tiffany

That is wonderful. What a help it is to so many. Thank you both. I first made contact with Sue nearly 30 years ago – Robyn

Thanks so much for all the straightforward, practical advice over the last 22 years (in my case!), you have truly been life savers - Helen

1 million of them is probably just from me checking stuff over and over 😂. Thank you for helping me SO much! 🙏💕 – Kristy

Thanks for all the advice you have shared over the years – Judy

What an incredible service you have provided families for all these years...through my daughter's journey i also learned about my own issues with amines and it has made an incredible difference to my quality of life, thank you! – Silv

Wow. Thanks for being there for so many years. A great knowledgeable support for so many people - Lorraine

Thanks for being there for so many of us in despair, then to see the way ahead - Helena

Whether you believe in God or not please celebrate this failsafe win with me!

My 8 year old son just told me sheepishly he wanted to tell me something god did for him today. His friend gave him 50c so he decided to get an icy at the canteen (full of flavouring and additives and we have been on strict elimination diet for 5 weeks)...then when he went to get it out of the cup the stick broke. So he went to the canteen and they gave him a spoon. Then the spoon broke. He thought in that moment god was telling him not to break the diet so he threw it in the bin. Bless his little heart ❤️- Kylie

Q: My 12yo son was diagnosed adhd & specific learning disorder 3 yrs ago & medicated. His teachers feel as though he is not progressing at all & he seems to be getting worse. They question his diagnosis, hence they are reassessing. I was hoping to try the elimination diet to see if this would help - am I best to do the 4 weeks elimination or just the ditch foods with additives, being that the main issue is that he is particularly vague, switches off, loses focus? - Bella

Answers from facebook group:

My son was diagnosed with ADHD when he was 6, he’s now 36. He was put on medication that didn’t help. Find something he’s really interested in, my son loved lego, to boost his concentration span, also reading, something that he loves, you will be rewarded, it takes time and a lot of effort from you but worthwhile – Della

Couldn’t agree more avoiding additives (incl synthetic perfumes etc), eating 100% organic is very effective for me as an autistic adult with ADHD. Medication still helps—it’s just not enough if the body is assaulted by inflammatory chemicals - Miff

I was asked to take my son for testing for autism but when he went onto strict elimination he completely changed overnight. His teacher told me she could see no sign of autism (although I know he's still got more subtle sensory needs, fixates on some things like science, how things work, screens, minecraft)...If he has something like broccoli he will run around crazily, sugar gives him a high but then a low where he'd lie down and cry, carrot for example he'd be aggressive or argue, some things he'll be very sensory and touch all the walls etc. Anyways, not a 'cure' as I think it is how he's wired and he's a really beautiful smart child... but it makes his life a lot easier - Micky

Autistic and ADHD person here. An elimination diet can help an environmentally Sensitive Autistic person but that's not the only thing that can help. Autistic people are sometimes capable of something called "Masking" which means suppressing Autistic traits. It's exhausting to do and causes fatigue and burnout. Getting him to stop doing the things that make him ADHD will lead to burnout. I would suggest you test him for Autism anyway and make sure his accommodations are met. There's lots of tools to help with sensory issues; headphones, weighted blankets, chewelry, fidget toys, etc. These will help him regulate his emotions and sift through uncomfortable stimuli - Sam

Any diet will not "cure" your child. Diets will only help your child if they are environmentally sensitive to those chemicals. Even if diet does do something, your child still has Autism or ADHD and finding ways to accommodate their needs instead of suppressing them will lead to an infinitely happier child. Put it this way, if loud noises bother your child you can teach them not to react to the noise, but the noise will be as loud or bothersome as ever. They just won't feel safe enough to show that they're hurting - Sam again

I get so upset when people try to “cure” neurodivergence. I can confirm that whilst I get grievous mood swings from artificial flavours, no amount of bloody vanilla ice cream will get me through Kmart exposure for longer than 30 minutes. The sensory overload is hell. The language used around the discussion of diet and asd/adhd needs to change otherwise people will continue to feel unacceptable members of society – Kate

The thing is, the ND people who don't have these food and chemical sensitivities see the whole thing as a myth. They don't understand the relationship that things making us sick, tired, or in pain can impact our focus or our tolerance for sensory overload – Kate again

My son had behavioural issues at home and in classroom around age 8 and the elimination diet resolved most, it was amazing the difference within 3 weeks. He was found not to have ADHD as there was never an issue of concentration on things he was engaged with. He reacts to salicylate, amines, antioxidant, benzoate and glutamate all with different reactions. Although he has less adverse reaction to salicylate which make him more sensitive, emotional etc. I have always wondered if they contribute to his lack of concentration in class. My son now 14, eats relatively well at home but whatever he chooses away from home has fewer behavioural issues as he has grown but has zero interest in reading/writing school subjects and is behind for his age – Nicky

Everyone is different, so react to different things. So I'd definitely try full elimination. My 5yr old has ADHD, after 4wks we definitely saw improvements in focus and sitting still. Eg. from getting up from dining table 20+ times while having dinner to only getting up 2-5 times; finally sitting at group time and not running around the classroom and touching the child next to him; sat and focused on colouring in a picture for the first time. So hopefully he will be able to sit long enough to actually learn something now. Sals made him return to previous non-focus behaviours – Lena

It is very hard at first, I may have had a bit of a meltdown in the first week of planning menus. And being out and about or birthday parties is hard. My son has delays also, but has noticed himself that his speech has improved (his oppositional behaviour has reduced considerably so that he actually partakes in his speech sessions). He is so proud of himself, so I use that to remind him at parties etc, so he understands why he's on the diet. Plus I give him marshmallows and chips so he doesn't completely miss out – Lena again

It's easier with the assistance of an RPAH trained Dietitian - Samantha

My nose bleeds have finally stopped 4 days post Amine Challenge 😁👍 My ENT has been trying to work out the cause of sporadic nose bleeds for years! They even happen mid race up mountains but I know why now. I have heard so many crazy reasons for my nose bleeds over the years 😂. Pat yourselves on the back all of you celebrating failsafe wins out there 😁🤗 - Pam

Erin: Me too! Amines also. Unbelievable that I put up with it for so long!

Mary: Happens to me too!

See Amines factsheet

(Howard's comment: amines and other food chemicals can also alter blood pressure, see [1129] for instance)

Just wanted to report my good news about the elimination diet working to stop vertigo!  It's the salicylates, after trying to include some moderates, (too many at once) the vertigo came back mildly.  Next time I try some moderates I will have half a cup every second day to start with. My 'healthy' only wholefood diet before Failsafe was VERY high in all the natural food chemicals.  So thankful to the Dengates and RPAH for sharing their knowledge about how to relieve food intolerance symptoms – Laura

More in blog on vertigo

We started the strict elimination diet 8 weeks ago. After 5 weeks we reached baseline - it was incredible. He was a totally different child - calm, relaxed, focused, went straight to sleep and slept for 11 nearly 12 hours, was easy to reason with, had increased self control etc etc. Then we trialled dairy nearly 3 weeks ago......many of the behaviours returned, his sleep was instantly affected and his skin broke down in cracks and rashes. We are still trying to get back to baseline after the dairy challenge - could be weeks, months before we do. But at least I know dairy is part of the problem. We consult a dietitian regularly - one recommended by Sue Dengate. And I've read everything I can get my hands on. It makes so much sense to me now - Jacqui

UPDATE to [952] 5 years later: I must say also, thank you so much you have changed my eldest's life!  In fact, you have changed our whole family's life (including the Grandparents!) as we have all been avoiding additives for the past 5 yrs and wow what a difference it has made - Emma

I'm not too sure what the big words mean but the irrational defiance my kids showed vanished when we removed their food triggers through the diet – Mimsy

Failsafe changed our world - Charlotte

After suffering for some years from quite debilitating and embarrassing problems caused by food intolerances I finally found the RPAH Elimination Diet Handbook.  I have been using it now for the past 11 years.  It has become an essential part of my life and is always close by.  When slips happen and problems start to return I go straight back to the charts.  The Failsafe Newsletters are a great source of information and inspiration, please keep them coming!  I am very grateful to the RPAH and the Dengates for shining a light on the terrible problems intolerances and food additives can cause both adults and children – Lynda

Carpal Tunnel in both wrists is gone. No more braces for me. Salicylates caused the inflammation – Jo (Carpal tunnel syndrome is possibly the most common nerve disorder experienced today affecting 4-10 million Americans)

Amines were our trigger for "hating the world", sleep and anger which is supposedly common. However unfortunately everyone is different so you will need to do the elimination – Jane

My daughter diagnosed with ADHD, severe anxiety and reacts really badly to high sals, artificial colours, dairy and wheat. Definitely worth trying elimination process, it has helped us heaps – Lucy

My son (7.5) had a lot of success with the diet and teachers comment on his new found concentration. I would suggest doing in conjunction with a Failsafe dietician – Emma

Failsafe changed our lives. Our son couldn’t stay on task long, struggled to deal with other people changing what he was doing/playing with, etc. We have been failsafe for over a year. We did doctors first but got nowhere even with sample testing, hydrogen tests, ultrasound tests, etc – Donna

Our 9yo was very angry, upset, defiant. Often he would wake up and he “never relaxed” that day. That was our term for how he was emotionally when anything just seemed to trigger him. The diet really helped - Peter

A note on my food intolerance journey: one of my myriad symptoms used to be insomnia, which was really, really annoying. My symptoms are much better now, and in recent months I've been able to incorporate a lot more foods into my diet as long as I don't overdo it. Insomnia is 95% gone. But when I do eat some of these non-fs foods, one of my exciting new symptoms is restless legs. This is worst when I'm watching TV before bed, not in bed, fortunately. Sometimes I feel it in bed but certain positions relieve it. So still way better than insomnia, but a strange new one. I had blood work done recently for magnesium and Vitamin D and those numbers were fine. It's quite specific to after eating higher chemical foods. Anyone else get restless legs from food chems? – Teresa

This was something my husband suffered from, but it eased when I stopped dairy in his diet when at home. I used to occasionally get it before I stopped eating dairy many years ago – Mary

Yes, I get them when eat something I ought not to, I also get bad cramps when I do as well! Nights not the most fun for me, although, like you - I DO seem to be sleeping better, instead of waking every 2 hours, I now can sleep 3 hours straight – Di

(Howard comment: 16 other reports if you search our stories and see Factsheet on sleep disturbance and insomnia)

Q: How long did were your kiddos on the elimination diet before you saw significant changes? - Kylie

A: Answers from facebook thread:

Immediately - Sue

Fast, I had a completely changed child within 3 weeks - Nicky

3 days and that wasn’t even full elimination. It then got worse before it got better again - Nadine

4 weeks for us but glad we hung in there - Shellie

3-4 wks - 4yr old; included moderate foods - definitely better results when less of the mod foods; done for ADHD; can concentrate/sit for 20 min as opposed to 3 seconds previously, way less oppositional/defiant, less meltdowns, improved speech. Was subtle at first, but when we did the first challenge it became apparent just how much he'd improved - Lee

About a week. Then there were behaviour upsets for a few weeks until week four when I think he realised he felt better and just decided he was ok eating failsafe for the one that was a toddler at the time - Michelle

I am on week 5 and found I had to drop from moderate to low food to clear my migraines & other side effects. (my nose still runs at every meal though) - Pam

A few days. 2-3 weeks for big change. But, we had to do low. We keep failing all of our challenges and I have recently realised that most rice products I thought were okay, are actually not. Once we cut out rice products (except for actual rice) we finally got to the end of it. I feel amazing. Then I eat out and curse myself for how sick I am feeling – Erin

48 hours max! I must confess there were a few emotional withdrawal moment. Relatively minor though – Lyn

(Howard comment: don’t forget withdrawals, a good sign that you are reacting to food, typically on days 4-5 after starting elimination – see factsheet)

I never post but I am feeling overwhelmed today!! All I wanted with sick kids and no sleep, I have a 4 yo girl, 2 yo boy and 4.5 mth old baby.. all sick .. went off the low salicylate diet for 2 weeks .. I just wanted the foods mum cooked me .. now I have a 4 yo tantruming and peeing and pooing herself .. 2 yo hitting everyone but still well mannered .. baby is neutral .. don't know how long it will take for kids to reset but God it is hard being on this diet for kids – Danna

(Howard comment: great support from facebook group including recipes, seeking dietitian support, getting the Failsafe Cookbook and antidote “to help them reset you can put a cup of Epsom salts in their bath for the next two baths. This will make it faster. It clears all food chemicals. To help clear salicylates get a quarter of a tsp of bicarb into a drink that will help too”)

I'm finding the Wein AS300R very helpful. It has definitely helped lift a lot of my brain fog (I've been diagnosed with MCS which has a huge impact on my diet and food tolerance). I did find the Wein smelly from VOCs (unwearable) when I first received it and put it outside in the fresh air and wrapped in carbon fabric overnight which helped a lot and it's now wearable. I can see how others might struggle. It has also helped in the car. I use an air purifier in the car but I was still struggling. Wearing the Wein as well while in the car, means I arrive at work after my morning commute with a clear head and start my day able to think. At work I have a small office, also with an air purifier in it and I do reasonably well in that room. However, every time I leave that room I'm exposed to building VOCs, cooking smells from a cafe in the building, air "freshener" (!) smells in the toilets, food smells where people prepare lunches and general perfume,  laundry powder, deodorant smells - the typical stuff that causes problems for us sensitive folk. Here the Wein really works well. I do notice it struggles with any of these if they are very strong. My husband is thrilled with my improvement so far. Thanks for making this great tool available. I can see I'll be using it a lot and I plan to buy a second one as back up -  Frances

UPDATE OVER A YEAR LATER:

I wanted to give you a follow-up update on the Wein. I used it flying to Queensland, back in the time where we could fly around the country, however that trip did not go so well.

On the return journey, I used the Wein and a face mask and that was fantastic, the best I have ever been while on a plane. No brain fog, nausea, or fatigue.  Well worth it.

When I stumbled upon your website, at the time with my eldest 2 kids behaviour, every  day felt like groundhog day. I was a mess, at my wits’ end and barely surviving, not to mention the toll it was taking my relationship with my husband.

When we started our failsafe journey in 2019, our 4 year-old was the worst of the 3 kids with:

* hyperactivity * no impulse control * didn’t like loud noises * defiance* OCD * hard to get to sleep * phases of night wakings * sensory issues * mood swings * extremely fussy eater * anxiety * autistic traits (salicylates and amines) * no volume control * strips off his clothes (salicylates) * aggressive behavior * constantly running away.

It was at the point where we didn’t want to go out as a family, play dates or dinner because we had to keep our eye on him 24/7 as he would run off and we couldn’t find him. He would across roads and car parks without looking if there were traffic coming and we have had a couple of really close calls that got my heart beating out of my chest. Even in a play cafe he would head straight to the fire exit... when the alarm went off he would continue to run off through the carpark away from the play cafe staff like it was a game! It was just too stressful and we would get home physically, mentally and emotionally exhausted from it.

I got to the point where I was too scared to take the 3 kids even to a playground in fear he would go missing, or while I’m tending to him something would happen with the other two kids. I was frustrated, tired and the anxiety was overwhelming that we mostly just stayed home or we would have to have the 4 year-old strapped in the double pram with the 2 year-old and the looks or comments I would get having an older kid strapped in a pram was gave me anxiety so I stopped giving eye contact to others or pretending I didn’t notice them talking to me to avoid having to awkwardly respond.

But even when we stayed home the fighting between the kids was full on, the aggression and yelling was horrendous. The 4 year-old would do things like drag the 6 year-old down the hall way by her hair and the even got into a fight while I my husband was making lunch which ended up in the 6 year-old going to hospital to have her head glued as the 4 year-old pulled her by the hair in a rage and smashed her head into the corner of a cupboard. It didn’t finish there either, the 6 year-old got into a fight with the 4 year-old and sent his head through the glass of his bedroom window, it couldn’t keep going on or one of them would be badly injured!

The first I’d ever heard of food chemicals was an Early Childhood Educator at the local Occasional care because she approached me one day in 2019 as she could see I was desperate and she suggested we look into diet to start with. We went dairy and gluten free to begin with (we were already dairy free as all 3 kids have never tolerated dairy since birth) big improvements with going gluten free and stopped most of the lack of impulse control including running away from us and some defiance but there was a pieces missing, so she suggested we look into salicylates and possibly amines only because her child had the same issue and picked up on the same behaviour issues but because I didn’t know much about them I dismissed it for the time being thinking it was mainly gluten that was the issue.

Our 6 year-old was the same but slightly different where these behaviour traits would be supressed at kindy or school and unleashed at home:

*hyperactive * extremely aggressive towards 4 year-old * no volume control * has to be making a noise all the time * fighting with sibling constantly * OCD * extreme defiance * frequent night wakings * screaming/shouting * trouble getting to sleep * mood swings it felt like we were dealing with a teenager not a 6 year-old * extremely over emotional like crying for no apparent reason.

She already had food intolerances‚ since a newborn with dairy and even with that eliminated through my breast milk she has never been a good sleeper, always frequently waking. It progressed at the age of 2 where we noticed that she was having night terrors and I started to realise it was when she ate strawberries that day, the night terrors still randomly happened.

My husband thought I was crazy with the strawberry theory and I was 'looking' for an intolerance that wasn’t there... until the day he discovered carrot and apple was also setting her night terrors off. As she approached 4 she was able to tell us it felt like ants crawling up her nose and that’s why she woke screaming and she also could breathe through her nose, so we made a food diary and found other fruits contributing to the problem.

Countless doctors looked at us puzzled, one day a different doctor put it down to allergic rhinitis and prescribed a nasal steroid and told us to use kids zyrtec as it was only spring and summer it would happen. This worked initially then stopped working and progressed through winter too so we went to an ENT who ruled out tonsils/adenoids and confirmed allergic rhinitis. We also found a link: her extreme emotional outbursts were a result of yeast extract (MSG) like vegemite and it lasted for 3 days before it wore off.

We were tired, exhausted and severely sleep deprived from waking constantly from the night terrors and I would try absolutely anything at this point, I was scrolling through facebook one day and found an article on histamine intolerance and thought 'that’s exactly what happens to my child'! So in September 2020 we started limited histamine triggering foods and the nose itching and night terrors decreased so we didn’t need to use the zyrtec or steroids as much.

So I then started looking at multiple websites for something dietwise that could help not just our 4 year-old but also help the 6 year-old’s self diagnosed histamine intolerance but there was so much mixed information on the internet I just wanted to cry. It just broke me and I wondered how on earth I could actually do this at all! I typed in 'fed up with hyperactivity' in frustration and there was..... The Fed up website and it has changed our life for the better and helped us in so many ways, I am forever grateful for being able to find all the info that covers the histamine intolerance too.

Our 6 year-old was still having gluten but when COVID-19 hit Australia and we were forced to home school it was easier for the whole family to go completely gluten free instead of making several meals when there was barely anything left at the shops.... and would you believe it, our missing piece for her histamine intolerance was gluten!! We haven’t used nasal steroids or zyrtec since going gluten free and have discovered my husband’ seasonal hayfever (I think its histamine intolerance too!) is triggered by gluten also, so I know if either of them have had gluten as their noses play up and the 6 year-olds 'night terrors' and itchy nose/congestion occur for 3 days following gluten.

The 4 year-old’s sensitivities are dairy, gluten, salicylates (including inhaled), amines, any artificial/natural colours, preservatives, antioxidants and artificial flavours. The 6 year-old is much the same as our 4 year-old but instead of amines she is sensitive to glutamates.

Basically in a nutshell all of the behaviours even the autistic and sensory traits disappeared around week 3 of the failsafe diet it was such a transformation - we got to see these two completely different kids for who they really are not who the food turned them into!

Doing this diet as a family has also uncovered my own sensitivities as I get a migraines when I eat dairy or smell fragrances/ chemicals and I know why now! Our 2 year-old hasn't had any issues prior to the failsafe diet but does seem to sleep better than before so we will continue to do the diet as a family because it’s honestly changed us all for the better and we are eating so much healthier with cleaner eating without all the additives! 

It was really hard at first changing our diet, I’ve cried many tears and thought a thousand times it’s easier to give up on the failsafe diet and just deal with the behaviour but after the 4 year-old had 2 weeks of antibiotics to clear up 2 infections I realised that the diet had made a huge difference and didn’t want to go back to how it originally was EVER!

So we haven’t looked back since and now we have got our heads wrapped around recipes that work for our family it has become so much easier! Thank you again Sue and Howard for all the work you have done and time you have put into the website for people like myself that don’t know where to turn next - Danielle